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Abstract

Objective

The purpose of this project was to engage a diverse group of stakeholders (N=38) to help establish priorities to guide patient-centered outcomes research (PCOR) in serious mental illness.

Methods

Three meetings, two Web-based and one on site, were held to generate and prioritize an initial list of topics. Topics were then sorted and organized into common themes.

Results

About 140 topics were identified and sorted into 21 main themes, ranked by priority. Three of the top four themes focused on how research was conducted, particularly the need to develop consensus measurement and outcomes definitions; improving infrastructure for research, longitudinal studies, and new data sets and investigators; and developing PCOR methodology. Stakeholders also identified a need to focus on service delivery, treatment settings, and structure of the delivery of care.

Conclusions

Engagement by a broad group of stakeholders in a transparent process resulted in the identification of priority areas for PCOR. Stakeholders clearly indicated a need to fundamentally change how research on serious mental illness is conducted and a critical need for the development of methodology and infrastructure. Most current PCOR has been focused on relatively short-term outcomes, but real world, long-term studies providing guidance for treatment over the lifetime of a serious mental illness are needed.

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Published In

Go to Psychiatric Services
Go to Psychiatric Services
Cover: Untitled, by Robert Rauschenberg, 1963. Oil, silkscreened ink, metal, and plastic on canvas; 82 × 48 × 6¼ inches. Solomon R. Guggenheim Museum, New York, purchased with funds contributed by Elaine and Werner Dannheisser and the Dannheisser Foundation (82.2912).
Psychiatric Services
Pages: 1125 - 1130
PubMed: 23117509

History

Published online: 1 November 2012
Published in print: November 2012

Authors

Details

Daniel E. Jonas, M.D., M.P.H.
Alyssa J. Mansfield, M.P.H., Ph.D.
Lea C. Watson, M.D., M.P.H.
Sonia Tyutyulkova, M.D., Ph.D.
Karen Crotty, M.P.H., Ph.D.
Meera Viswanathan, Ph.D.
Samantha Slaughter-Mason, M.P.H.
Dr. Jonas is affiliated with the Department of Medicine and Dr. Gilmore, Dr. Watson, and Dr. Shetiman are with the Department of Psychiatry, University of North Carolina (UNC) at Chapel Hill, 5039 Old Clinic Building, CB 7110, Chapel Hill, NC 27599 (e-mail: [email protected]). Dr. Jonas is also with the Cecil G. Sheps Center for Health Services Research, where Ms. Brode is affiliated, and Dr. Gilmore is also with the UNC Center for Excellence in Community Mental Health, both at UNC at Chapel Hill.
Dr. Mansfield is with the National Center for PTSD, Pacific Islands Division, Veterans Health Administration, Honolulu, Hawaii.
Ms. Curtis, Ms. Gordon, and Ms. Slaughter-Mason are with the Scientific Resource Center, Oregon Evidence-Based Practice Center, Oregon Health Sciences University, Portland.
Dr. Tyutyulkova is in private practice in Baltimore. At the time of this research, she was with the Agency for Healthcare Research and Quality, Rockville, Maryland.
Dr. Crotty is affiliated with Hayes, Inc., Lansdale, Pennsylvania.
Dr. Viswanathan and Ms. Tant are with Research Triangle Institute International, Research Triangle Park, North Carolina, where Dr. Crotty and Dr. Mansfield were affiliated at the time of this research.

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