Skip to main content

Abstract

Innovative models of medical and psychiatric care are necessary to address the complex needs of individuals with intellectual and developmental disabilities (IDD), including autism. This article describes a subspecialty medical home program that has provided accessible, comprehensive, coordinated, patient- and family-centered care for this high-needs, underserved patient population. For more than two decades, the University of Utah Huntsman Mental Health Institute Neurobehavior HOME Program (HOME) has provided primary and behavioral health care for individuals with IDD across their lifespan. Program highlights include integrated medical and behavioral health, a unique funding structure, innovative care delivery, and case management. HOME is a clinical setting as well as a Medicaid managed care plan that has blended medical and psychiatric funding streams. This unique funding structure has demonstrated the fiscal sustainability of focusing care on preventive and proactive management of health concerns and responding to crises using a coordinated and comprehensive approach. Rethinking health care delivery and adopting models that are both financially sustainable and provide quality care to this vulnerable population is greatly needed.

Get full access to this article

View all available purchase options and get full access to this article.

Information & Authors

Information

Published In

History

Published in print: Spring 2024
Published online: 15 April 2024

Keywords

  1. Intellectual and developmental disabilities
  2. Medical Homes
  3. Autism Spectrum Disorder
  4. Neurodevelopmental Disorders
  5. Mental Health Care/Service Delivery Systems

Authors

Details

Patricia Aguayo, M.D., M.P.H. [email protected]
Department of Psychiatry (Aguayo, Lin, Stevens, Bilder, Rapaport), and Department of Pediatrics (Carbone, Bilder), University of Utah, Salt Lake City.
Anne G. Lin, M.D.
Department of Psychiatry (Aguayo, Lin, Stevens, Bilder, Rapaport), and Department of Pediatrics (Carbone, Bilder), University of Utah, Salt Lake City.
Paul T. Stevens, M.D.
Department of Psychiatry (Aguayo, Lin, Stevens, Bilder, Rapaport), and Department of Pediatrics (Carbone, Bilder), University of Utah, Salt Lake City.
Paul S. Carbone, M.D.
Department of Psychiatry (Aguayo, Lin, Stevens, Bilder, Rapaport), and Department of Pediatrics (Carbone, Bilder), University of Utah, Salt Lake City.
Deborah A. Bilder, M.D.
Department of Psychiatry (Aguayo, Lin, Stevens, Bilder, Rapaport), and Department of Pediatrics (Carbone, Bilder), University of Utah, Salt Lake City.
Mark H. Rapaport, M.D.
Department of Psychiatry (Aguayo, Lin, Stevens, Bilder, Rapaport), and Department of Pediatrics (Carbone, Bilder), University of Utah, Salt Lake City.

Notes

Send correspondence to Dr. Aguayo ([email protected]).

Competing Interests

Dr. Bilder reports her work as a consultant and advisory board member for BioMarin Pharmaceutical, Taysha Gene Therapies, Encoded Therapeutics, Synlogic Therapeutics, and as an advisory board member for Sanofi. The other authors report no financial relationships with commercial interests.

Metrics & Citations

Metrics

Citations

Export Citations

If you have the appropriate software installed, you can download article citation data to the citation manager of your choice. Simply select your manager software from the list below and click Download.

For more information or tips please see 'Downloading to a citation manager' in the Help menu.

Format
Citation style
Style
Copy to clipboard

View Options

Login options

Already a subscriber? Access your subscription through your login credentials or your institution for full access to this article.

Personal login Institutional Login Open Athens login
Purchase Options

Purchase this article to access the full text.

PPV Articles - Focus

PPV Articles - Focus

Not a subscriber?

Subscribe Now / Learn More

PsychiatryOnline subscription options offer access to the DSM-5-TR® library, books, journals, CME, and patient resources. This all-in-one virtual library provides psychiatrists and mental health professionals with key resources for diagnosis, treatment, research, and professional development.

Need more help? PsychiatryOnline Customer Service may be reached by emailing [email protected] or by calling 800-368-5777 (in the U.S.) or 703-907-7322 (outside the U.S.).

View options

PDF/EPUB

View PDF/EPUB

Full Text

View Full Text

Media

Figures

Other

Tables

Share

Share

Share article link

Share