In 2013, the Centers for Disease Control and Prevention published a report highlighting the central influence of mental health on the well-being of young school-age children (
1). Diagnosed mental disorders were shown to be among the most prevalent chronic health conditions of children between the ages of six and 11. According to parent reports, 8.4% of children had been diagnosed as having attention-deficit hyperactivity disorder (ADHD), 4.3% as having anxiety disorder, 2.9% as having phobias or fears, and 2.3% as having depression (
1). For some children, mental conditions result in serious difficulties with school (
2), peer, and family activities (
3) and are associated with problems related to substance use (
4), sexual risk–taking behavior (
5), and criminal activity in young adulthood (
6). Furthermore, symptoms of a childhood mental disorder are often the first signs of a persistent mental condition (
7–
9).
Both medication and other types of treatment have been shown to improve symptoms of mental disorders among children. Clinical studies have established the efficacy and safety of psychotropic medications for the treatment of some childhood mental disorders (
10), including ADHD (
11,
12), and guidelines for their use have been developed (
13). Evidence also supports the effectiveness of psychosocial services (treatment other than medication, including counseling) for ADHD as well as other mental disorders of childhood (
14–
19).
Despite the serious impact of child mental conditions and the benefit of treatment (
20–
28), many children do not receive needed mental health care (
29–
31). In the 1990s, the percentage of children with unmet need for mental health services was estimated to be as high as 80% (
29,
32,
33). Several factors contribute to the unmet need for mental health care among children, including provider shortages (
30,
34), inadequate insurance coverage for mental health services (
35), and an inability or reluctance among parents to recognize and seek treatment for mental conditions among their children. Providers may also have difficulty recognizing mental disorders among child patients (
36–
39). In some cases, subclinical symptoms of mental disorders are difficult to detect, or transient episodes resolve spontaneously before care is obtained.
National studies of utilization of medication and psychosocial services for childhood mental disorders have primarily focused on adolescents (
40,
41). There have been fewer national studies that describe mental health service use among younger school-age children. Mental health service utilization by school-age children has been shown to differ from other age groups for specific subpopulations of children, such as children enrolled in Medicaid (
42). However, there has been no recent examination on a national basis of mental health service utilization patterns in this age group. Most existing studies also lack a comprehensive description of mental health service use among children with emotional or behavioral difficulties (EBDs) or lack clarity in the services that survey respondents include when reporting receipt of a mental health service (
29,
43). Some studies have focused on children with a specific diagnosis, primarily ADHD (
44–
47). Other national studies have used a single question to identify whether a child received psychosocial services, often without clarifying whether school-based services were included (
48,
49). Still others have focused on utilization in terms of visits to physicians or physician prescribing behavior (
50) or health care expenditures (
51). These studies have not examined mental health services from a population perspective. Finally, most previous studies have focused solely on either psychotropic drug usage (
52–
55) or psychosocial services (
56), but not both. Although a few studies have collected information about both medication and psychosocial services (
43,
57,
58), whether psychosocial services were used alone or in conjunction with medication has not been well described. The few large studies that included both medication usage and a broader range of psychosocial services are older and may not reflect children’s current use of mental health services (
32,
33,
58,
59).
This study built on previous research by using data from a large, nationally representative household health survey to describe use of a broad range of mental health services among U.S. children ages six to 11.
Methods
Data Source
The 2010–2012 National Health Interview Survey (NHIS), a nationally representative, cross-sectional, in-person household interview survey of the civilian noninstitutionalized population, was used for this study. For some analyses, only data from the 2011–2012 NHIS were used, as described below. The complex sample design has been described in detail elsewhere (
60). Information about a sample child is obtained from an adult residing in the household who is knowledgeable about the child’s health. Because over 90% of respondents for children were their parents, in this study the respondent is referred to as the child’s parent. In 2010, 2011, and 2012, the response rate for the sample child segment of the survey was 70.7%, 74.6%, and 69.7%, respectively (
60–
62).
This analysis included 11,286 children ages six to 11 from the sample child files of the 2010–2012 NHIS. Because of missing data about the severity of the child’s EBDs, 104 children were excluded (N=11,182). Except as otherwise noted, data from all three survey years were combined to yield more reliable estimates.
Measures
EBDs during the past six months.
All children were categorized by level of EBDs (no, minor, or serious) by using two survey questions. First, the parent was asked about current difficulties: “Overall, do you think that (sample child) has difficulties in any of the following areas: emotions, concentration, behavior, or being able to get along with other people?” If the parent answered, “No,” the child was categorized as having no EBDs. If the parent answered, “Yes, minor difficulties,” the child was categorized as having minor EBDs. If the parent answered, “Yes, definite difficulties,” or “Yes, severe difficulties,” the child was categorized as having serious EBDs. The combining of “definite” and “severe” difficulties is consistent with previous work using these questions (
58,
63–
65). This question is from the Strengths and Difficulties Questionnaire, a validated scale for identifying behavioral problems (
66). This single overall difficulties question has been shown to correlate with utilization of mental health resources (
58) and has been used as an indicator of population-level mental health well-being in U.S. federal government reports (
63).
Next, parents were asked, “Has (sample child) had any difficulties with emotions, concentration, behavior, or getting along with others during the past six months?” If a parent answered “yes” but had answered “no” to the first question, the child was categorized as having minor EBDs. Therefore, children with current EBDs or with EBDs during the past six months were included in our analytic sample.
Service use and unmet need during the past six months.
The parents of all children were asked a question about whether the child was prescribed medication or took medication for EBDs during the past six months or was currently taking medication for EBDs. Although children may take medication for many conditions, henceforth “medication” refers only to medication for EBDs. Only parents of children identified as having either serious or minor EBDs (N=2,516) were asked a set of questions about the use of psychosocial services. On the basis of responses to questions about medication and psychosocial services, children with EBDs were categorized into four service use groups: both medication and psychosocial services use; psychosocial services use only, medication only; and neither type of service use. Sixteen parents did not provide enough information to categorize children into a service use group. Perceived unmet need for psychosocial services was assessed by asking whether the child had needed treatment or counseling for EBDs during the past six months but had not received services. [Survey questions about the use of psychosocial services are available in an online supplement to this article.]
In 2011 and 2012, the NHIS included questions about treatment provided to children with EBDs during the past six months by specific types of psychosocial service providers [see online supplement]. The questions on EBD classification and receipt of both medication and psychosocial services were consistent across all three years of the NHIS, but the questions on psychosocial service providers on the 2011–2012 NHIS differed from those used in 2010. Parents were asked about receipt of services from non–school-based providers, including a pediatrician or family doctor; a psychiatrist; a psychologist, a clinical social worker, or a psychiatric nurse; a speech, occupational, or physical therapist or “other” provider; a religious or spiritual counselor or advisor; and a probation or juvenile corrections officer or court counselor. Parents could state that the child received services from multiple types of providers; responses were not mutually exclusive. School-based services for children with EBDs included special schools, special programs located in regular schools, and services at schools that were not part of a special program for children with EBDs. We formed a hierarchy of mutually exclusive categories of school-based services. The analysis of service providers was limited to the 2011–2012 sample.
Child sociodemographic characteristics.
Children were categorized by sex, insurance status (any private, public only, and uninsured), race-ethnicity (non-Hispanic white, non-Hispanic black, non-Hispanic other, and Hispanic), and family income (<200% or ≥200% of federal poverty level [FPL]). Less than 1% of children had missing values for these sociodemographic variables, with the exception of family income. For family income, 16.1% (unweighted) of children had missing data, but multiply imputed values were supplied by the NHIS and used in all analyses. Observations with missing, but not imputed, values for a given variable were excluded from analyses involving that variable.
Analysis
Chi square tests were used both to examine the distribution of socioeconomic variables across EBD categories of serious, minor, and none and to examine distributions of service utilization across sociodemographic groups within serious and minor EBD categories. When chi square testing yielded statistically significant results, further pairwise comparisons were conducted by using Z tests. Multivariate analysis was not conducted because of multicollinearity of independent variables and because the focus of the analyses was utilization by different sociodemographic groups rather than drivers of utilization patterns. The results of multivariate analyses can be found elsewhere (
56,
64). [Detailed methods of the analysis can be found in the
online supplement.]
Results
Prevalence of EBDs
In 2010–2012, 23.1% (95% confidence interval [CI]=22.2%−24.1%) of children ages six to 11 in the United States were identified as having EBDs, with 5.8% (CI=5.3%−6.4%) having serious EBDs and 17.3% (CI=16.5%−18.2%) having minor EBDs. As shown in
Table 1, children with serious and minor EBDs were more likely than children without EBDs to be boys, to be older (ages nine to 11), and to have family incomes of <200% of FPL and were less likely than children without EBDs to have private insurance (p<.001 for all comparisons). Children with serious EBDs were more likely than children with minor EBDs to be boys and to have family incomes of <200% of FPL and were less likely than children with minor EBDs to have private insurance (p<.001 for all comparisons) (
Table 1).
Use of Services Among Children With EBDs
As shown in
Table 2, among all children with EBDs, 17.8% were receiving both medication and psychosocial services, 28.8% psychosocial services only, 6.8% medication only, and 46.6% neither type of service. Among children with serious EBDs, 40.0% were receiving both medication and psychosocial services, 34.6% psychosocial services only, 7.2% medication only, and 18.2% neither type of service. Among children with minor EBDs, 10.3% were receiving both medication and psychosocial services, 26.9% psychosocial services only, 6.7% medication only, and 56.1% neither type of service.
Among children with serious EBDs, boys were more likely than girls to receive both medication and psychosocial services (p<.01), and children in families with incomes of ≥200% of FPL were more likely to receive medication only (p<.05). Among children with minor EBDs, however, all sociodemographic characteristics, except age, were associated with use of services.
Providers of Psychosocial Services
In 2011–2012, among all children with EBDs, 18.6% (CI=16.4%−20.9%) received school-based psychosocial services only, 11.4% (CI=9.6%−13.5%) received non–school-based psychosocial services only, and 17.3% (CI=15.2%−19.7%) received both school-based and non–school-based psychosocial services. A higher percentage of children with serious EBDs compared with minor EBDs received school-based and non–school-based psychosocial services, both solely and jointly (data not shown).
Non–school-based providers.
As shown in
Table 3, 71.2% of children with EBDs did not receive non–school-based psychosocial services; 5.4% of children with EBDs received non–school-based psychosocial services from a pediatrician or family doctor, 6.9% from a psychiatrist, and 11.1% from a psychologist, clinical social worker, or psychiatric nurse. The percentage of children receiving services from each of the provider groups listed above was higher among children with serious EBDs compared with minor EBDs (p<.01 for each comparison).
School-based providers.
As shown in
Table 4, among children with EBDs, 4.9% received school-based psychosocial services from a special school for children with EBDs, 12.3% received services in a special program at a regular school, and 18.5% received services at a regular school but not as part of a special program for children with EBDs. Nearly two-thirds (64.2%) received no school-based psychosocial services. The percentage of children with EBDs receiving school-based psychosocial services varied by level of EBDs, with 72.5% of children with minor EBDs and 39.3% of children with serious EBDs receiving no school-based services (p<.001).
Unmet Need for Psychosocial Services
In 2010–2012, the parents of 8.2% (CI=7.0%−9.7%) of all children with EBDs stated that their child had unmet need for psychosocial services, including 17.6% (CI=13.9%−22.0%) of children with serious EBDs and 5.1% (CI=4.1%−6.4%) of children with minor EBDs (p<.001 for comparison of unmet need among children with serious and minor EBDs).
Discussion
This study indicates that although 23% of children ages six to 11 in the United States were reported to have EBDs, only 53% of children with these difficulties received either medication or psychosocial services. Use of some type of mental health service was greater among children with serious EBDs (82%) compared with children with minor EBDs (44%).
Previous national studies have often reported lower utilization rates for child mental health services (
29,
33,
56,
58,
67) compared with the rates reported in this study. However, comparisons across studies are challenging, given that methodologies vary in terms of age groups, populations examined, time periods included, and definitions of child mental health problems and service use. We used a broader definition of mental health services compared with other studies (
29,
48), explicitly including medication as well as both school-based and non–school-based psychosocial services. Our estimates of service use also may be higher because of the recent rise in use of medication (
54,
68) and psychosocial services. Prior to this study, the most recently published national data on utilization of mental health services in this age group were from 2005–2006 (
57), and some commonly cited studies used data from the 1990s (
29) or earlier (
33).
In our study, there were more associations between sociodemographic variables and service use among children with minor EBDs compared with serious EBDs. These relationships may be difficult to interpret. For example, it is unclear why the percentage of children with minor EBDs who used services was greater among those with public insurance versus no insurance or private insurance.
Regardless of the severity of difficulties, a greater percentage of children with EBDs received psychosocial services versus medication. Many children with EBDs (18.6%) received psychosocial services only at school, suggesting an important role for schools in providing services. Few studies have estimated the use of school-based services on a large scale (
57), and it is likely that service provision may have changed since the data were collected (
33,
69,
70).
Among providers of non–school-based psychosocial services, psychologists, clinical social workers, and psychiatric nurses were shown to play an important role in providing services to children with EBDs. The importance of these providers for mental health care in the United States has been shown previously, although there are no recent estimates of utilization of their services (
70).
Measurement of unmet need for mental health services among children with EBDs presents several challenges. In our study, we identified possible unmet need among children with EBDs in two ways: parent reports of perceived unmet need for children’s psychosocial services regardless of current use of services and parent report of use of neither medication nor psychosocial services. Need for services among persons who do not receive services may be difficult to ascertain, particularly among children with minor EBDs. For example, some of the 56.1% of children with minor EBDs who received no services may have subclinical symptoms and may not require services. Nonetheless, other studies have used similar measures of unmet need (
29,
32). Among all children with EBDs in our study, 8.2% had an unmet need for psychosocial services, according to parent report. Using the second measure of unmet need, we found that approximately 18% and 56% of children with serious EBDs and minor EBDs, respectively, were receiving no mental health services. In previous large population surveys, when estimates of unmet need for mental health services have been based on the percentage of children receiving needed mental health services, estimates of unmet need have usually been higher than the estimates we report (
29,
32,
33,
48,
56). Higher estimates of unmet need in those studies compared to ours are most likely due to inclusion of fewer types of mental health services in ascertainment of whether mental health services were obtained. Earlier estimates of perceived unmet need for mental health services, however, have been similar to our findings (
58,
71).
This study had limitations. Our measure of EBDs was based on two questions, but previous research suggests that this measure correlates with more detailed mental health assessments and may be more sensitive than more detailed mental health assessments in identifying children who have received mental health services (
58). Although our mental health service use measures were based on parental recall, rather than a child’s school or medical records, previous studies have shown that parental report is a reliable measure of child mental health service utilization (
72,
73). Also, responses were parent reports, and the meaning of responses in some situations was not always clear, such as affirmative responses to the question about unmet need. Also, the direction of causality between reported severity of EBDs and utilization may be difficult to ascertain. Finally, the estimates reported did not include children in the institutionalized population.
Conclusions
Young school-age children (ages six to 11) with EBDs currently receive a mix of services, depending on the severity of their difficulties and other sociodemographic characteristics. However, many school-age children with EBDs receive neither medication nor psychosocial services. Also, school-based providers play an important role in delivering psychosocial services to children with serious and minor EBDs.