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Research, Community, & Services Partnerships
Published Online: 11 January 2024

Creation of a Psychotic Disorders Research Advisory Board as a Shared Resource

Abstract

Community engagement is important for research, yet many researchers do not routinely seek feedback from people with lived experience. A key barrier to this engagement is that the resources required to create an advisory board may be unavailable to individual investigators, and creating an advisory board for a single study may often be impractical. In this column, the authors describe how to create a standing research advisory board that can serve as a shared resource for researchers and community members and provide a psychosis research advisory board example to aid discussion.

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File (appi.ps.20230328.ds001.pdf)

Information & Authors

Information

Published In

Go to Psychiatric Services
Go to Psychiatric Services
Psychiatric Services
Pages: 387 - 390
PubMed: 38204370

History

Received: 5 July 2023
Revision received: 22 September 2023
Accepted: 7 November 2023
Published online: 11 January 2024
Published in print: April 01, 2024

Keywords

  1. Community engagement
  2. Advisory board
  3. Lived experience
  4. Peer specialists
  5. Psychosis
  6. Research

Authors

Affiliations

Julie M. McCarthy, Ph.D. [email protected]
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).
Emily E. Carol, Ph.D.
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).
Stephen J. Fedele, B.A.
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).
Mary Grace Shinners, B.A.
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).
Hadley C. Walia, B.A.
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).
Julia Yelick, Ph.D.
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).
Dost Öngür, M.D., Ph.D.
Division of Psychotic Disorders, McLean Hospital, Belmont, Massachusetts (McCarthy, Carol, Fedele, Shinners, Walia, Öngür); Department of Psychiatry, Harvard Medical School, Boston (McCarthy, Carol, Öngür); Graduate School of Biomedical Sciences, Tufts University, Boston (Yelick).

Notes

Send correspondence to Dr. McCarthy ([email protected]). Debra A. Pinals, M.D., Enrico G. Castillo, M.D., M.S.H.P.M., and Ayorkor Gaba, Psy.D., are editors of this column.

Competing Interests

Dr. Öngür received honoraria from Guggenheim LLC and Neumora for scientific presentations. The other authors report no financial relationships with commercial interests.

Funding Information

This study was supported in part by NIH grants K23DA050808 and P50MH115846.These views represent the opinions of the authors and not necessarily those of McLean Hospital, Harvard Medical School, or Tufts University.

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