Report Card on NIMH Research Portfolio Finds Inadequate Funding of Studies of Serious Mental Illnesses
The National Institute of Mental Health (NIMH) continues to underfund scientific research into serious mental illnesses, defined as schizophrenia, bipolar disorder, autism, severe forms of depression, panic disorder, and obsessive-compulsive disorder, according to a report released by the Treatment Advocacy Center and the Public Citizen Health Research Group. The report, which analyzes NIMH research awards for fiscal year 2002, shows that 28.5 percent of award funds allocated by NIMH went to research on these disorders, even though the disorders account for 58 percent of total direct costs of all mental illnesses.
Between 1997 and 2002, the proportion of NIMH research awards for all aspects of serious mental illnesses decreased by 11 percent—from 32.1 percent to 28.5 percent, according to the report. For clinically relevant aspects of serious mental illnesses—that is, for research that is reasonably likely to improve the treatment and quality of life of affected individuals—awards decreased by 22 percent, from 7.4 percent in 1997 to 5.8 percent in 2002. The report points out that these decreases occurred during a period in which the NIMH budget doubled—from $661 million in 1997 to $1.3 billion in 2002.
The report is the third in a series analyzing NIMH's research portfolio since 1997 and identifying rejected proposals. The first report, published in 1999 by the National Alliance for the Mentally Ill (NAMI) and the NAMI Research Institute—A Mission Forgotten: The Failure of the National Institute of Mental Health To Do Sufficient Research on Severe Mental Illness—found that only about a third of 1997 awards went to research on severe mental disorders and recommended that two-thirds of NIMH annual resources should be allocated to research on serious mental illnesses. The second report in the series, published in 2000 by the Treatment Advocacy Center, found no improvement in the percentage of allocations for research on severe mental illnesses.
In a statement released along with the current report, E. Fuller Torrey, M.D., the report's lead author and president of the Treatment Advocacy Center's board, said, "By not funding research on serious mental illnesses, NIMH isn't simply hurting scientists, it's blocking research that could improve the lives of millions of the most vulnerable Americans. NIMH's refusal to do an adequate amount of research on serious mental illnesses is a federal disgrace and a personal tragedy for individuals affected with these diseases."
Research projects that the institute chose to fund may be necessary and valid, the report's authors said, but they should not come at the expense of NIMH's commitment to studying serious mental illnesses. Many other federal institutions, ranging from the National Science Foundation to the U.S. Department of Transportation, should be funding research currently paid for by NIMH. For example, the report criticizes NIMH for funding research on depression among women with breast cancer, calling on the National Cancer Institute to support such studies.
According to the report, NIMH has rejected many valid research proposals and funded others that appear to have no relationship to serious mental illnesses. The projects that were rejected would have cost approximately the same amount as those that were funded. For example, in 2002 NIMH rejected funding for a study of bipolar disorder among children, for research on measuring lithium levels in the brain, and for a study of alternative means of supporting patients released from psychiatric hospitals. Instead it funded research to ascertain how people in Papua New Guinea "think about their own relationships in the real world," to examine social communication among electric fish, and to determine how people in Czechoslovakia cope with social change, the report noted.
The report makes several recommendations, including holding Congressional hearings to establish a minimum percentage of the NIMH budget that must be spent on research into serious mental illness and directing the General Accounting Office to evaluate the NIMH research portfolio.
Other advocacy groups were quick to condemn the report. For example, the National Mental Health Association called it "shortsighted and dangerous … bad science and bad public health" and accused it of "slandering NIMH's broad research agenda," criticizing legitimate research on disorders affecting millions of people, and "ridiculing" efforts to improve the cultural competence of mental health interventions.
A Federal Failure in Psychiatric Research: Continuing NIMH Negligence in Funding Sufficient Research on Serious Mental Illnesses can be downloaded from the Treatment Advocacy Web site at www.psychlaws.org.
News Briefs
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