Despite having an increased risk of experiencing co-occurring mental health conditions, individuals with intellectual and developmental disabilities (IDDs) face barriers to accessing appropriate mental health care. Challenges individuals face include stigma and exclusion from mainstream mental health services. On a systems level, barriers to appropriate care include insufficient training for mental health providers on how to care for patients with IDD (e.g., on diagnostic overshadowing, how to collaborate with family and caregivers, adapted communication, and managing multiple health issues) and a lack of integration among the various sectors that provide care to these individuals.
This collection highlights patient profiles and health services utilization among individuals with IDDs, existing barriers to care, and best practices and innovation in service delivery for this population. Features of promising initiatives include cross-sector collaboration, streamlined access, outreach, and specialized training. As illustrated in this collection, there is an imperative to build capacity within mental health services and the mental health workforce to provide high-quality care for people with IDDs.
All-Cause, 30-Day Readmissions Among Persons With Intellectual and Developmental Disabilities and Mental Illness
Robert Balogh, Ph.D., B.H.Sc.(P.T.), Elizabeth Lin, Ph.D., Kristin Dobranowski, M.H.Sc., Avra Selick, M.A., Andrew S. Wilton, M.Sc., and Yona Lunsky, Ph.D., C.Psych.
2018, Volume 69, Issue 3, pp 353–357
Psychotropic Use Among Youths With Intellectual and Developmental Disabilities
Jennifer L. McLaren, M.D., Jonathan D. Lichtenstein, Psy.D., M.B.A., Justin D. Metcalfe, M.S., Ph.D., Lauren R. Charlot, L.I.C.S.W., Ph.D., Robert E. Drake, M.D, Ph.D., and Joan B. Beasley, Ph.D.
2021, Volume 72, Issue 9, pp 988–997
Parent-Reported Use of Interventions by Toddlers and Preschoolers With Autism Spectrum Disorder
Nalin Payakachat, Ph.D., J. Mick Tilford, Ph.D., and Karen A. Kuhlthau, Ph.D.
2018, Volume 69, Issue 2, pp 186–194
Impact of the COVID-19 Pandemic on the Behavioral Health of People With Intellectual and Developmental Disabilities
Jessica Solomon Sanders, Rajapillai L. I. Pillai, M.D., Ph.D., Rachel Sturley, Stefan Sillau, Ph.D., Miya R. Asato, M.D., Bhooma R. Aravamuthan, M.D., D.Phil., Karen Bonuck, Ph.D., Mackenzie C. Cervenka, M.D., Nancy Hammond, M.D., Joanne F. Siegel, L.C.S.W., Vincent Siasoco, M.D., and Benjamin A. Margolis, M.D.
2022, Volume 73, Issue 12, pp 1389–1392
Self-Injurious Behavior Among Adults With ASD: Hospitalizations, Length of Stay, and Costs of Resources to Deliver Care
Morgan C. Shields, M.Sc., M.A., Ilhom Akobirshoev, Ph.D., Robert S. Dembo, M.A., and Monika Mitra, Ph.D.
2019, Volume 70, Issue 6, pp 457–464
Timeliness of Autism Spectrum Disorder Diagnosis and Use of Services Among U.S. Elementary School–Aged Children
Katharine Zuckerman, M.D., M.P.H., Olivia Jasmine Lindly, M.P.H., and Alison Elizabeth Chavez, B.A.
2017, Volume 68, Issue 1, pp 33–40
Management of Mental Health Crises Among Youths With and Without ASD: A National Survey of Child Psychiatrists
Luther G. Kalb, M.H.S., Elizabeth A. Stuart, Ph.D., David S. Mandell, Ph.D., Mark Olfson, M.D., M.P.H., and Roma A. Vasa, M.D.
2017, Volume 68, Issue 10, pp 1039–1045
Interagency Coordination to Manage Co-Occurring Intellectual and Developmental Disabilities and Mental Health Conditions
Elizabeth M. Stone, Ph.D., M.S.P.H., Andrew D. Jopson, M.P.H., Danielle German, Ph.D., M.P.H., Alexander D. McCourt, J.D., Ph.D., and Emma E. McGinty, Ph.D., M.S.
2024, Volume 75, Issue 8, pp 770–777
Health Care Experiences and Perceived Financial Impact Among Families of Children With an Autism Spectrum Disorder
Benjamin Zablotsky, Ph.D., Luther G. Kalb, M.H.S., Brian Freedman, Ph.D., Roma Vasa, M.D., and Elizabeth A. Stuart, Ph.D.
2014, Volume 65, Issue 3, pp 395–398
Pathways to a Diagnosis of Autism Spectrum Disorder
Patricia Zavaleta-Ramírez, M.D., M.Sc., Marcos Francisco Rosetti, Ph.D., Lilia Albores-Gallo, Ph.D., Manuel Alejandro Vargas-Soberanis, M.D., Omar Nafate López, M.D., and Maria Elena Medina-Mora, Ph.D.
2020, Volume 71, Issue 11, pp 1120–1126
Preliminary Assessment of a Novel Continuum-of-Care Model for Young People With Autism Spectrum Disorders
Michael R. Cummings, M.D., Steven L. Dubovsky, M.D., Isaac Ehrlich, Ph.D., Sevie Kandefer, M.S., Janell Van Cleve, M.S.Ed., Yong Yin, Ph.D., Victoria Cranwell, B.A., Joshua Gordon, B.A., and Margaret Youngs, B.A.
2020, Volume 71, Issue 12, pp 1313–1316
Supporting Efforts by Intellectually Disabled Adults to Exit Homelessness: Key Ingredients of a Cross-Sector Partnership
Denise Lamanna, M.A., Yona Lunsky, Ph.D., C.Psych., Sophia Wen, B.Sc., Denise Dubois, M.Sc., O.T., and Vicky Stergiopoulos, M.H.Sc., M.D.
2020, Volume 71, Issue 1, pp 96–99
Persons With Intellectual and Developmental Disabilities in the Mental Health System: Part 1. Clinical Considerations
Debra A. Pinals, M.D., Lisa Hovermale, M.D., Danna Mauch, Ph.D., and Lisa Anacker, M.D.
2022a, Volume 73, Issue 3, pp 313–320
Persons With Intellectual and Developmental Disabilities in the Mental Health System: Part 2. Policy and Systems Considerations
Debra A. Pinals, M.D., Lisa Hovermale, M.D., Danna Mauch, Ph.D., and Lisa Anacker, M.D.
2022b, Volume 73, Issue 3, pp 321–328
Predictors of Mental Health Crises Among Individuals With Intellectual and Developmental Disabilities Enrolled in the START Program
Luther G. Kalb, Ph.D., Joan B. Beasley, Ph.D., Andrea Caoili, L.C.S.W., Jennifer L. McLaren, M.D., and Jarrett Barnhill, M.D.
2021, Volume 72, Issue 3, pp 273–280
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