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Case Report
Published Online: 6 September 2024

Considerations When Treating Patients Who Lack Decision-Making Capacity for Patient-Directed Discharge Due to General Medical Conditions

Publication: American Journal of Psychiatry Residents' Journal
Patient-directed discharge (PDD) accounts for approximately 1.4% of inpatient hospital discharges (1). PDDs are associated with increased readmission rates, morbidity, and 30-day mortality, yet research is limited on what portion of these discharges occurs among patients who lack decision-making capacity for PDD (2). Hospitalized patients may lack decision-making capacity for PDD for many reasons. Although some patients may have an underlying mental illness contributing to their cognitive impairment, often general medical conditions, such as delirium, hepatic encephalopathy, and traumatic brain injuries, may present with cognitive impairment. Substance intoxication and withdrawal are leading causes of PDD, although this is a more nuanced topic that is beyond the scope of the present article (3). Decision-making capacity regarding medical care is defined by patients’ ability to communicate a clear preference toward treatment or nontreatment, comprehend their medical condition and consequences of treatment options, and rationally manipulate information regarding the treatment options (4). Decision-making capacity is not a blanket statement for all medical decisions but rather is determined for a specific decision and is dynamic.
Prevention and deescalation techniques should always be implemented, and a surrogate decision maker should be identified when possible; however, when a patient is agitated and attempting PDD, the primary team must act. In California, for example, there remain inconsistencies regarding how such situations are handled (5, 6). Local and state laws as well as specific institutional policies may affect how these situations are handled (5, 7). PDD continues to be a point of discomfort for clinicians, particularly when the impairment is due to a general medical condition and when there is no intent for psychiatric hospitalization (6, 7). To highlight this discomfort and the need for improved policies, we present a case of a patient who lacked decision-making capacity for PDD because of underlying acute general medical conditions and was ultimately placed on an involuntary psychiatric hold, despite there being no intent for psychiatric hospitalization, because hospital security would otherwise not have prevented the patient from discharging, even with consent from the surrogate decision maker to continue hospitalization.

Case Presentation

A 60-year-old woman with a history of major depressive disorder, mild cognitive impairment, epilepsy, hypothyroidism, and type 2 diabetes was admitted to the intensive care unit at an academic medical center for diabetic ketoacidosis. The psychiatry consultation-liaison service was consulted for a capacity evaluation because the patient was attempting PDD.
According to the primary team, the patient was making nonsensical statements and lacked decision-making capacity for PDD. The next of kin provided consent for the patient to remain hospitalized. However, after discussion with risk management, the primary team requested further assistance because the hospital had no clear protocol for keeping this patient without her being placed on an involuntary psychiatric hold, irrespective of whether her impairment was due to a mental illness and despite having a surrogate decision maker consent to continuing hospitalization.
On evaluation, the patient was disoriented and minimally able to engage in conversation or demonstrate decision-making capacity for PDD. Her altered mental status was determined to be due to diabetic ketoacidosis with contributions from cognitive impairment, antidepressant withdrawal, and hypothyroidism. After multidisciplinary discussions, despite no intent for psychiatric hospitalization, she was placed on a 72-hour involuntary psychiatric hold, placed in restraints, and administered intramuscular medications. The following day, after further treatment, the patient was fully oriented, and the involuntary psychiatric hold was discontinued.

Discussion

Psychiatrists are increasingly consulted for PDD to help navigate the complex ethical and legal ramifications of this type of discharge, with a 1991 study indicating that about 25% of consultations to a psychiatry consultation-liaison service were for decision-making capacity for PDD (810). Should patients who lack decision-making capacity for PDD be allowed to leave the hospital, or should they remain hospitalized involuntarily? The ethical principle nonmaleficence describes the obligation to avoid causing harm, and although efforts should be made to preserve autonomy, it is generally clear, with some exceptions, that patients with acute life-threatening general medical conditions who lack capacity for PDD should remain in the hospital (11, 12). Choosing to allow PDD in these cases would expose the patients to unnecessary harm and expose the providers to liability (1113). Yet, in California, there is no explicit law to prevent medically incapacitated patients from PDD (7). At our institution, the general accepted practice is that hospital public safety officers are unable to restrain patients unless they are on an involuntary psychiatric hold, irrespective of whether an underlying mental health condition is contributing to their impairment. Such institutional policies vary across hospitals and by state and may or may not align with existing state law, which can be a gray area (7).

Psychiatric Holds

Involuntary psychiatric holds, namely Welfare and Institutions Code 5150 in California, where patients who are deemed to be a danger to themselves, a danger to others, or gravely disabled due to a mental illness, may be used in such cases to prevent patients from leaving the hospital (14). One study found that up to 20% of these holds were used to prevent patients who were medically incapacitated from PDD (5). According to a 2016 review, every state has some form of an emergency involuntary psychiatric hold, allowing patients to be held involuntarily (15). Five states allow involuntary psychiatric holds to be placed on individuals deemed to be a danger to themselves or others without specifying whether the danger is a result of a mental illness (15). This can be controversial, however, because often in these cases, the impairment is not to the result of an underlying mental illness. This leads to the question of what is a mental illness? Dementia? Delirium? Substance use? Because these conditions are in DSM-5, should they be considered mental illnesses? In California, for example, although there is a debatable gray area, the general sentiment regarding the Lanterman-Petris-Short Act (legislation outlining involuntary mental health treatment in California) is that it is not intended for patients with many of these types of conditions who do not require psychiatric hospitalization (16). However, this distinction was made a bit murkier in a recent court case that allowed mental health conservatorship of a patient with a diagnosis of dementia (17). Furthermore, recent changes to California law have expanded the definition of grave disability to include conditions resulting from a substance use disorder (18). If the law continues to expand the definition of grave disability to include other causes of altered mental status, this may increase the number of involuntary psychiatric holds and, in turn, psychiatric hospitalizations. It is questionable whether patients with certain neurocognitive disorders would benefit from inpatient psychiatric hospitalization or whether this would cause further diversion of resources and psychiatric beds in an overcrowded system. The use of involuntary psychiatric holds on these patients in our institution often leads to delays in discharge resulting from communication delays and difficulty securing nonpsychiatric placement for patients on involuntary psychiatric holds. Additionally, providers could potentially be held liable for inappropriate use of involuntary psychiatric holds if they are used on patients whose impairment is clearly due to a general medical condition. Involuntary psychiatric holds also can have implications for firearm ownership; in California, there is a mandatory probationary period for owning a firearm (19). Some individuals may also be worried that an involuntary psychiatric hold would affect potential job prospects, and others may experience trauma because of the stigma associated with involuntary psychiatric holds (20). This also places additional stress on mental health professionals, diverting resources away from where they are needed. Ultimately, if an involuntary psychiatric hold is the only tool available to hold a patient who lacks capacity for PDD, in order to abide by the ethical principle of nonmaleficence, there is no reasonable alternative. However, this may not be possible in other institutions. In some states, police are the only ones who can initiate involuntary psychiatric holds (15). There should be additional tools in place to allow such patients to remain hospitalized without the need for an involuntary psychiatric hold.

Medical Holds

Although there is no legal basis for a medical hold in California, to help address the discomfort associated with placing involuntary psychiatric holds on these patients, an interdisciplinary committee at the University of California, Los Angeles developed a “medical incapacity hold” (5). The goal was to provide an alternative to involuntary psychiatric holds among medically hospitalized patients who lack decision-making capacity for PDD. Notably, the patients for whom a medical incapacity hold is intended do not have a mental illness and would not benefit from psychiatric hospitalization. Such patients placed on a medical incapacity hold would then be reevaluated daily, and efforts would be made to identify surrogate decision makers who may elect discharge. The concept of a medical incapacity hold allows physicians to maintain the safety of a patient while avoiding improper or controversial use of involuntary psychiatric holds.

Conclusions

With few exceptions, patients with acute life-threatening general medical or mental illness who lack decision-making capacity for PDD should remain hospitalized. However, this continues to be an unresolved issue that causes discomfort (6, 7). Multidisciplinary approaches for prevention and de-escalation of these situations should always be attempted; however, in the emergent setting when a patient is agitated and requesting PDD, there may be no time to identify a surrogate decision maker. Having clear and consistent protocols in place would streamline these situations and prevent undue stress. Although medical incapacity holds may be a great option, some institutions may not take on the associated risks of such an arbitrary tool. Another option would be to use capacity evaluations as the basis for holding patients. Further research is currently under way to evaluate the level of discomfort in such situations and assess how they are handled at institutions across the United States.
Ultimately, clinicians must continue multidisciplinary discussions to determine the best approach to handle these situations. Organizations such as the American Psychiatric Association (APA) and the Academy of Consultation-Liaison Psychiatry should consider expanding on guidance described in a 2019 resource document from the APA’s Council on Consultation-Liaison Psychiatry that detailed recommendations regarding how to perform comprehensive capacity assessments to include recommendations for how patients should remain hospitalized when they lack decision-making capacity for PDD (21).

Key Points/Clinical Pearls

When patients lack decision-making capacity for patient-directed discharge (PDD), a surrogate decision maker should be identified.
Involuntary psychiatric holds and institutional medical holds are sometimes used to hold patients who lack decision-making capacity for PDD.
State and local laws and institutional policies may affect how situations are handled when patients lack decision-making capacity for PDD.

Footnote

The authors confirm that details of the case have been disguised to protect patient privacy. The authors obtained written consent from the patient’s surrogate decision maker for publication of this case report.

References

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Hedman LC, Petrila J, Fisher WH, et al: State laws on emergency holds for mental health stabilization. Psychiatr Serv 2016;67:529–535
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County of Los Angeles v People of the State of California, Real Parties in Interest (2014). FindLaw. https://caselaw.findlaw.com/court/ca-court-of-appeal/1655192.html
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California Code, Welfare and Institutions Code WIC section 8103. https://codes.findlaw.com/ca/welfare-and-institutions-code/wic-sect-8103
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Jones N, Gius BK, Shields M, et al: Investigating the impact of involuntary psychiatric hospitalization on youth and young adult trust and help-seeking in pathways to care. Soc Psychiatry Psychiatr Epidemiol 2021;56:2017–2027
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Bourgeois JA, Tiamson-Kassab M, Sheehan KA, et al: Resource Document on Decisional Capacity Determinations in Consultation-Liaison Psychiatry: A Guide for the General Psychiatrist. Washington, DC, American Psychiatric Association, 2019

Information & Authors

Information

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Go to American Journal of Psychiatry Residents' Journal
American Journal of Psychiatry Residents' Journal
Pages: 26 - 28

History

Published online: 6 September 2024
Published in print: September 6, 2024

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Eric N. Kramer, M.D., M.P.H.
Drs. Kramer and Perkey are fourth-year and co-chief residents in the Department of Psychiatry and Human Behavior at the University of California, Irvine Health, Orange.
Dina Perkey, M.D.
Drs. Kramer and Perkey are fourth-year and co-chief residents in the Department of Psychiatry and Human Behavior at the University of California, Irvine Health, Orange.

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