Ethics Commentary
Child and adolescent psychiatrists encounter ethical situations that often differ from those of general psychiatrists. Several factors increase the complexity of ethical practice in child and adolescent psychiatry including the variety of persons involved in meeting the mental health needs of children, the care of a vulnerable population whose welfare relies on others, the limited access to mental health services for children, and the advancements in science which provide an increasing number of diagnostic and treatment options.
Notably, general psychiatrists also provide care for patients younger than 18 and for college-age youth for whom developmental considerations are highly relevant. These clinical interactions arise due to clinician interest or out of necessity i.e. the shortage of child and adolescent psychiatrists, or limited access to care in rural settings. All psychiatrists completing general residency from an accredited program have had exposure to the care of children, adolescents and their families, but the frequency and depth of clinical care of youth by generally trained psychiatrists varies widely.
This column provides an overview of the American Academy of Child and Adolescent Psychiatry (AACAP) code of ethics, which in theory applies to the clinical care of all patients, and was designed specifically to provide child and adolescent psychiatrists, as well as other clinicians who care for the mental health needs of children, with an ethical framework of practice (1). Further discussion of all ten principles of the code, and information and an extensive bibliography on ethics in child and psychiatry, can be found online at the Ethics Resource Center of AACAP (2). Given the discrete nature of this column, discussion will focus on three vignettes and the principles of the code that are commonly utilized by child and adolescent psychiatrists: developmental perspective, assent / consent, and confidentiality.
Because pediatric patients develop within a unique ecological system inhabited by many individuals (e.g. siblings, parents, other family, friends, teachers, coaches, clergy, clinicians), and organizations (e.g. schools, clinics, foster care, government and legal agencies), such complexity demands careful attention to the needs of all stakeholders. Above all, child and adolescent psychiatrists must identify the best interests of the developing child, who as a minor has limited decision-making abilities and autonomy amid this varied landscape. In all contexts, the child and adolescent psychiatrist must often balance competing agendas and provide care within an ethical framework, applied in day-to-day practice.
The ethical foundations of child and adolescent psychiatry stem from traditional biomedical ethics with specific applications to psychiatry. These include the four pillars of autonomy, beneficence, nonmaleficence, and justice (3, 4). However, specific considerations in the clinical care of children have necessitated the development of a code of ethics that serves youth in need of mental health care.
In 2008, the American Academy of Child and Adolescent Psychiatry (AACAP) Executive Council revised it's code of ethics and instituted a requirement that member clinicians obtain, and attest to, at least one hour of ethics training every two years. Although modest in nature, this requirement demonstrates the strong belief that knowledge of medical ethics is a sine qua non for competent child psychiatrists—whether clinicians, researchers or administrators. In 2009, AACAP published its code of ethics to outline 10 principles that are intrinsic to the care of patients to guide clinicians in all professional encounters, whether routine or unusual (Table 1).
| Principles | Focus |
|---|---|
| Developmental Perspective | •. • Children and families evolve through stages of development •. • Physical, cognitive, social, and emotional aspects of development influence a child's ability to understand and make decisions •. • Chronological age and developmental status are not always the same |
| Promoting the Welfare of Children and Adolescents (Beneficence) | •. • The wellbeing, functioning, and development of youth as individuals, and as a group, should be optimized whenever appropriate •. • Societal, familial and other group pressures should not override the best interest of the child •. • Whenever possible, evidence-based methods of treatment should be used in care |
| Minimizing Harmful Effects (Nonmaleficence) | •. • Clinicians should avoid any practice that is harmful to, or may hinder, the optimal development of the patient •. • Efforts should be made to minimize harm to children as a group due to the action of others •. • Relationships with patients beyond professional interactions should be carefully considered and avoided when indicated or harmful •. • Any conflicts of interest or obligations to those other than patient should be readily disclosed |
| Assent and Consent (Autonomy) | •. • Respecting the rights of youth in medical decision making is key to establishing trust •. • For those under 18 years old, consent for treatment should be obtained from the guardian with assent from the minor however in some states certain treatments are available to minors without guardian consent •. • Additional attention should be paid when guardian and youth disagree about treatment decisions •. • When youth are involved in research protocols, the decision making will be more complex and informed assent and consent require additional measures |
| Confidentiality (Autonomy/ Fidelity) | •. • Limits of confidentiality and circumstances necessitating disclosures should be discussed in a developmentally appropriate manner with the patient and the guardian •. • Documented release of information to outside entities must occur with guardian consent and patient assent except in emergencies |
| Third Party Influence (Fidelity) | •. • A patient’s best interests supersede competing interests •. • Practitioners should contemplate how his/her role may be influenced by outside parties and monitor their professional interactions to support patient welfare |
| Research Activities | •. • While research to advance knowledge of child and adolescent psychiatry is important, the welfare of youth should never be compromised for research efforts •. • Risks of research must always be fully disclosed •. • When youth are involved in research protocols, they must always assent to participation and can rescind at anytime; the decision making will be more complex and will require additional measures •. • Researcher and organizational conflicts of interest must always be fully disclosed |
| Advocacy and Equity (Justice) | •. • Practitioners should strive to make access to mental health care available to all children and families in need •. • Risks of care or research should not be unjustly borne by excessively vulnerable youth |
| Professional Rewards | •. • Rewards may influence practitioner decision making and can impact youth and family welfare •. • Care should be taken to avoid negative influence of merits and rewards on practitioner judgment and action |
| Legal Considerations | •. • Local, state and federal laws impact the practice of child and adolescent psychiatry •. • Legal and ethical practice may be coincident or in conflict with each other, and practitioners should be aware of this complex and changing relationship •. • Laws outline minimally acceptable actions; ethics strive optimal planning and behavior |
Developmental perspective: principle I
The medical and psychiatric care of children would be incomplete without consideration of physical, cognitive, psychological, and social development. In addition, families also evolve and their ability to understand factors surrounding medical decision-making may change over time as their understanding and acceptance of illness progresses. Over the past few decades, the importance of a child’s right to self-determination has influenced how children are integrated into decision making (5). Studies in child development have demonstrated that understanding the right to self-nurturance versus the right to self-determination varies based on chronological age, however the progression of concrete to abstract reasoning for these two types of rights differed at all ages (6, 7). Younger children more easily identify the right to be cared for and protected, and older children (around age 14) regard the salience of issues regarding self-determination and nurturance equally. Therefore, children’s understanding of various types of rights does not occur at the same pace; conceptualization of rights develops at different ages. These nuances of development necessitate further attention from practitioners and families on how to include children in decision-making in the most therapeutic way, while upholding their best interest.
Case vignette 1
Ashley is a 6-year-old girl in first grade who has received over a dozen “oops” slips for disruptive behavior in the classroom since the beginning of the academic year four months ago. She is rarely invited to birthday parties; her teacher has called her parents several times for parent-teacher meetings at school, and she consistently earns low marks because she forgets her supplies and assignments. She has struggled with similar challenges and complaints in kindergarten. Her parents report it takes a long time to get her ready for school and for bed because Ashley is always physically active, easily distracted by toys, television, and what others are doing in the house. Based on her clinical history, mental status exam, collateral report and scales from parents, teacher, and after-school caregivers, your primary diagnosis is attention deficit hyperactivity disorder-combined type (ADHD-CT). In providing feedback about the evaluation to Ashley and her parents, Ashley says with downward gaze “No one likes me. They won’t let me play with them at recess.” After supplying further psycho-education about ADHD-CT, you recommend a trial of a medication. Ashley then says “I am always in trouble. I keep doing everything wrong.”
This brief vignette demonstrates the importance of assessing the developmental stage of the patient for 1) proper assessment of the presenting clinical problem, 2) the patient’s pattern of response to that problem, and 3) the patient’s ability to partake in treatment planning and decision making.
Ashley’s early elementary school experience suggests that her ability to sustain attention and follow directions is developmentally different than the majority of her peers. For someone her age, the home routine, the structure of the elementary school classroom environment, the guidance of the teacher as authority figure and role model, and the wish to gain mastery of new skills in learning and play provide children with the psychosocial support to succeed in expressions of industry [versus inferiority] (8). Ashley is having difficulty with some of these Ericksonian milestones, and this has impaired her functioning and impacted her development by isolating her from her peers and limiting her academic success.
Ashley’s response in session conveys her awareness of her repeated difficulties. Peers and teachers view her negatively and she is not meeting the expectations of her parents who have brought her to the doctor. Cognitively, she knows something is “wrong.” The concept that her problems may stem from differences in brain structure and chemistry affecting her executive functioning and behavior is likely far beyond her reasoning abilities. In fact, her age-appropriate tendency for concrete and magical thinking may lead to further confusion about a biologically based explanation for her problems and the role of medication. Thus, it is the child psychiatrist’s role to explain the diagnosis and treatment in a developmentally appropriate manner.
As treatment options are discussed, given her developmental stage, Ashley will likely defer to her parents to make decisions. As noted given her developmental stage, she will expect her parents to protect her from harm and provide her with care; she is less likely to see that she has a choice. Therefore the power differential in the patient–doctor relationship should not be unwittingly exploited to persuade a decision in favor of treatment with medication simply because that may be the doctor’s initial recommendations. Additionally, how Ashley is involved in these decisions may compound her feelings of inadequacy (if she is completely disregarded), or her agency can be used to enhance a sense of control and problem solving (an important developmental milestone at her current age). Finally, the parents’ tone in how treatment planning is presented to their daughter should be carefully considered, as their approach will strongly influence her beliefs about the risks and benefits of treatment. Providing caregivers with time to ask questions and express ambivalence about treatment options without the patient present allows the ultimate decision makers the opportunity to arrive at a unified and consistent message. Clarity from adults is always in the best interest of the child when seeking assent to any intervention.
Assent and consent (autonomy): principle IV
The concept of informed consent focuses on respecting the rights of patients and caregivers to make their own informed decisions without pressure. Youth under the age of 18 years should be involved in the decision making about their care and assent should be obtained. Guardians must always consent to treatment except in emergencies or in certain states when treatment is available to a minor without guardian consent and it is in the best interest of the child to bypass the guardian. Practitioners should provide full communication about all relevant issues for informed decisions to be made. Particular care should be taken when youth and guardian disagree (1).
Complicating this ethical guideline is the fact that the minor is often not the one initiating the evaluation for mental health concerns or treatment. And, when it comes to the use of psychotropic medications, some treatments lack rigorous pediatric data supporting their effectiveness, or information on their potential neurodevelopmental impact is still under study. In situations when parental consent is required for an intervention, assent should be obtained from the child or teen patient in question. There is considerable variation between jurisdictions as to whether youth are legally allowed to refuse treatment despite parental consent, and whether a pediatric patient can consent to treatment against their parents' wishes. Finally, some children and teens may have restrictions on their ability to assent or consent depending on their circumstances. For example, children and adolescents in state custody often cannot decide with whom they live and those incarcerated may not be able to make decisions about treatment (1).
Case vignette 2
Carlos is an 11-year-old boy with moderate motor tics, referred to you from the general pediatrics clinic. Carlos is well liked by teachers and other adults due to his sweet nature and insightful comments that are mature for his age, but he has trouble making and keeping friends his own age. He seems oblivious to this, stating that he has “many friends” his age, both in and out of school. His parents tell you privately that this is not the case, and that he gets teased and ostracized by peers due to his phonic and motor tics. His parents want treatment started before “he starts middle school, to minimize teasing.” The patient is adamant that he doesn't want to take medication, and says “I don't need to be fixed. I like me just the way I am.” The parents want to support his autonomy, but ask you to help convince him to begin a medication trial as soon as possible, “before things get worse.”
This case illustrates several clinical issues. The parents seem well-intentioned, and hope that the doctor can convince their son to choose the path (taking medication) which can help to alleviate potential future suffering because of teasing. As the clinician considers whether the parents are also worried about their own sense of embarrassment over the child's symptoms, it is important to consider the perspective of both parent and child in order to develop a strategy to overcome this impasse. Because Carlos seems wary of being “changed” by any medication treatment (“I like me just the way I am”), yet also seems oblivious to his social isolation for now, the clinician would be wise to first focus on Carlos' sense of autonomy (right to self-determination and need for assent over his own care), and thus try to establish a solid therapeutic alliance in order to create a relational context with Carlos that can serve as fertile ground for future discussions about medication, as as well as other forms of treatment. This involves advocating on his behalf to the family to allow him to defer medication treatment for now, because he currently seems to understand the nature of the problem (his tics), and though he is minimally aware of consequences (social isolation), the symptoms don't bother him at present and are not causing distress to him currently. At the same time, the clinician must strive to maintain a dual alliance (9), so as not to alienate the parents from bringing Carlos back for further treatment. This includes emoting and communicating an understanding of the parents' current concerns and worst fears from their point of view. This can allow for a discussion in the child's best interests, and can make both parent and child feel that the doctor understands their different perspectives.
Previous authors (10, 11) have described the informed consent process in adults, which can be modified for application to this pediatric case. The three aspects of informed consent include information sharing, decision-making capacity, and voluntariness. The latter two are worth highlighting here. Carlos demonstrates decisional capacity regarding its four main components: to communicate a preference, to comprehend the information necessary for the decision, to appreciate the significance of the choice being made in the context of one’s life, and to reason (to weigh information, compare options, and consider consequences). Though the significance of his social isolation may not be apparent to him currently, this may change as he gets older. He may also be open to a nonmedication intervention first (e.g. habit reversal training) as recommended by the doctor as long as he perceives the medical team not to be “pushing medication” as the only treatment option.
The third component of informed consent, voluntarism, is the ability to make a free and uncoerced decision. Four domains of influence affect an individual’s ability to make a voluntary decision, including developmental factors, illness-related factors, psychological, cultural, and religious factors, and external features and pressures (10, 11). In the case of obtaining pediatric assent for treatment, it may be necessary to interview the child/teen separately to ensure freedom from a real or implied coercion from parents. Also, in instances where the physician encounters resistance to pharmacotherapy (or other treatment) by a reluctant patient or family, the clinician must be open to self-reflection about his or her own underlying motives, noble as they may seem during the doctor-patient-family encounter. For a further discussion of how to avoid turning the informed consent process into one of informed coercion, please see Krener and Mancina (12).
Confidentiality (autonomy/fidelity): principle V
As applied to child and adolescent psychiatry, the principle of confidentiality focuses on the patient's right to have information kept private and confidential. Practitioners should explain the nature (and any known limits) of confidentiality to their pediatric patients at the beginning of the treatment relationship. Furthermore, both patients and their families should always be told, preferably in advance, about necessary disclosures of information such as the reporting of abuse or neglect. The AACAP Code of Ethics (1) states, “Certainty that their verbal expressions are protected as confidential allows minor patients to reveal their feelings and thoughts to the clinicians providing care, with the assurance that the contents of their discussions will not be communicated to others without their permission.” Fidelity and autonomy are linked ethical concepts that are relevant to confidentiality when applied in child and adolescent psychiatry, in that “fidelity” refers to upholding one's duty and loyalty to a patient, while “autonomy” refers to the child's (and especially, the adolescent's), right to self-determination within a developmental context.
It is important to obtain both parent/guardian consent as well as patient assent for exchange of information with others involved in the child's care, such as the primary care provider and the child's school. While teens in particular can be reticent to allow disclosure of any mental health issues to school personnel, we and others (13) have found that identifying one key adult in school whom the teen can trust cannot only help empower the community safety net, it can also help de-stigmatize mental health disorders in important ways by following a similar protocol as one would with medical disorders (while still acknowledging the sensitive nature of the former). Selective and planned disclosure (pending approval from the teen) to a trusted adult (doctor, parent, teacher or other) regarding sensitive issues can also help guard against feelings of isolation or alienation, especially when dealing with a mental health condition.
Case vignette 3
A 16-year-old boy with ADHD and anxiety tells his psychiatrist that he is using marijuana and getting high before classes, several times per week. He has also sold marijuana on at least three occasions in school. He is disclosing this in therapy because he is sure that this will stay confidential, and also feels that “the THC is helping me to stay calm and focused for my classes.” He would like the doctor to prescribe medical marijuana for him which is legally available in his home state. He is currently treated with psychostimulants and an SSRI, in addition to collateral family support and individual therapy. His parents are concerned that the treatments are not working well enough, and “that he still is argumentative with us and getting in lots of trouble at school.”
The psychiatrist sees this as an opportunity for engagement (on a topic of importance to the patient), psychoeducation (basic facts on the neuroscience of attention, motivation, and the effects of THC on the brain) and limit setting (about the prescriber's scope of practice), while also being concerned for the potential harm to others (selling drugs) and harm to the patient (expulsion resulting form selling on school campus). A patient-centered, private, matter-of-fact discussion itself can be supportive of the adolescent's autonomy and personal sense of agency. In this case, the psychiatrist may decide to not disclose the patient's marijuana use to the parents to uphold the principle of confidentiality, yet would still raise concerns directly with the patient about the potential functional impairment from repetitive marijuana use, especially during the school week, and about the severe consequences that would result if he were to be caught dealing.
This case illustrates how issues of trust and confidentiality are more complex in child and adolescent psychiatry because we interact with parents as well as the patient. The rights of parents to know certain information about their child or teen needs to be balanced with the patients’ interests (14). In some cases, problematic behaviors may need a more systemic (family or school based) component, and adolescent patients may be more open to these interventions if there is a trusted relationship with the mental health provider beforehand. A motivational interview paradigm (15) may be the best approach, not only to engage the adolescent in the stages of change paradigm, but also to prevent the psychiatrist from being “parentified” by the patient or viewed as judgmental. The patient's responsibility for his educational progress and autonomy for his own care may be highlighted by having a frank and open family session about issues in treatment which may be either enhancing or impeding progress in treatment. Themes to include in the family session would be discussed with the patient ahead of time, and follow up sessions with the patient could address sensitive issues brought up in the family session.
Summary
These cases illustrate how developmental context and the ethical principles of informed consent and autonomy are essential elements in pediatric psychiatry practice, and for general psychiatrists treating minors and transitional age youth. With children and adolescents, attention to the treatment alliance is crucial for therapeutic progress. Furthermore, contextual elements are ever present and a dual alliance is required, wherein parents/guardians must play an important role, while not impeding the therapeutic activity between doctor and patient. The AACAP Code of Ethics represents a best practices approach and offers sound theoretical and practical guidelines for child and adolescent care providers.
Footnotes
Michelle Goldsmith, M.D., M.A., Division of Child & Adolescent Psychiatry, Stanford University School of Medicine, Stanford CA
Shashank V. Joshi, MD, Division of Child & Adolescent Psychiatry, Stanford University School of Medicine, Stanford CA
Dr. Goldsmith and Dr. Joshi report no conflicting interests.
Laura Weiss Roberts, M.D., Column Editor for Focus Ethics Commentary, Department of Psychiatry and Behavioral Sciences, Stanford University School of Medicine, Stanford, CA.
Owner, Investigator; Terra Nova Learning Systems.
References
1.
American Academy of Child and Adolescent Psychiatry: Code of Ethics. Washington, DC, AACAP 2009; Available from: http://www.aacap.org/galleries/AboutUs/AACAP_Code_of_Ethics.pdf.pdf.
2.
American Academy of Child and Adolescent Psychiatry Ethics Resource Center: Washington, DC, 2012 [05/13/2012]; Available from: http://www.aacap.org/cs/media/view_news_release?pressrelease.id=1476.
3.
Beauchamp TL, Childress JF: Principles of biomedical ethics. USA, Oxford University Press, 2001
4.
Roberts LW, Dyer AR. Concise guide to ethics in mental health care: American Psychiatric Pub; 2004.
5.
Hart SN: From Property to Person Status: Historical Perspective on Children's Rights. Am Psychol 1991; 46:53–59
6.
Ruck MD, Abramovitch R, Keating DP: Children’s and adolescents’ understanding of rights: balancing nurturance and self-determination. Child Dev 1998; 69:404–417
7.
Melton GB, Limber SP. 14. What Children's Rights Mean to Children: Children's Own Views. The ideologies of children's rights. 1992;23:167.
8.
Davies D: Child development: A practitioner's guide The Guilford Press, 2010
9.
Joshi SV. Teamwork: the therapeutic alliance in pediatric pharmacotherapy. Child and adolescent psychiatric clinics of North America. 2006;15(1):239-62. Epub 2005/12/03.
10.
Hoop JG, Smyth AC, Roberts LW. Ethical issues in psychiatric research on children and adolescents. Child and adolescent psychiatric clinics of North America. 2008;17(1):127-48, x. Epub 2007/11/27.
11.
Roberts LW. Informed consent and the capacity for voluntarism. The American journal of psychiatry. 2002;159(5):705-12. Epub 2002/05/03.
12.
Krener PK, Mancina RA: Informed consent or informed coercion? Decision-making in pediatric psychopharmacology. J Child Adolesc Psychopharmacol 1994; 4:183–200
13.
Feinstein NR, Fielding K, Udvari-Solner A, Joshi SV. The supporting alliance in child and adolescent treatment: enhancing collaboration among therapists, parents, and teachers. Am J Psychother. 2009;63(4):319-44. Epub 2010/02/06.
14.
Schetky DH: Ethics, in Lewis's Child and adolescent psychiatry: a comprehensive textbook, 4th ed. Edited by, Lewis M, Martin A, Volkmar FR. Philadelphia, Wolters Kluwer Health/Lippincott Williams & Wilkins, 2007, pp 17–22
15.
Dilallo JJ, Weiss G. Motivational interviewing and adolescent psychopharmacology. Journal of the American Academy of Child and Adolescent Psychiatry. 2009;48(2):108-13. Epub 2009/12/31.
Other Resources
Policy Statement: Family and Youth Participation in Clinical Decision-Making. Washington, DC, 2009 [5/31/2012]; Available from: http://www.aacap.org/cs/root/policy_statements/family_and_youth_participation_in_clinical_decisionmaking.
Campbell AT. Consent, competence, and confidentiality related to psychiatric conditions in adolescent medicine practice. Adolescent medicine clinics. 2006;17(1):25-47. Epub 2006/02/14.
Koocher GP: Ethics in child psychotherapy. Child Adolesc Psychiatr Clin N Am 1995; 4:779–791
Ratner RA. Ethics in child and adolescent forensic psychiatry. Child and adolescent psychiatric clinics of North America. 2002;11(4):887-904, ix. Epub 2002/10/26.
Sondheimer A, Jensen P: Ethics and child and adolescent psychiatry, in Psychiatric Ethics. Edited by, Bloch S, Green SA. London, Oxford Publishing, 2010, pp 385–407
Unguru Y, Coppes MJ, Kamani N. Rethinking pediatric assent: from requirement to ideal. Pediatric clinics of North America. 2008;55(1):211-22, xii. Epub 2008/02/05.
Case Studies in Ethics: Childhood and Adolescence
These case studies in ethics are adapted with permission from LW Roberts, JG Hoop: Professionalism and Ethics: Q&A Self-Study Guide for Mental Health Professionals. Arlington, VA: American Psychiatric Press, Inc., 2008, pp 120–122
Case A: A 9-year-old boy who derives from a distinct ethnic minority group is brought to treatment by his parents because of his oppositional behavior. The father reports using corporal punishment as a means of disciplining his son. The therapist, who is not familiar with the culture and values of the family’s ethnic group, tells the father that corporal punishment has not proven to be an effective form of discipline. The father informs the therapist that corporal punishment is part of the ethnic group’s tradition of disciplining children.
What best describes the therapist’s ethical obligation(s)?
A.
Accept the father’s cultural explanation and ask him to further educate the therapist about the ethnic minority group’s traditions and cultural practices
B.
Accept the father’s cultural explanation and set it aside as no longer a clinical issue
C.
Consult with a colleague who is knowledgeable about the specific ethnic minority group’s traditions to increase the therapist’s sensitivity and competence and inform the parents about their state’s definition of child abuse and the therapist’s role as a mandatory reporter
D.
Consult with a colleague who is knowledgeable about the specific ethnic minority group’s traditions to increase the therapist’s sensitivity and competence and use this as a guide for treatment
E.
File a report to the local children’s protective services agency, because spanking and other forms of corporal punishment always constitute child abuse
Clinicians have a responsibility to be sensitive to and knowledgeable about the cultural and ethnic differences that exist among their client populations. More specifically, clinicians are expected to recognize and appreciate the perspective of culturally different clients and how this perspective informs their values, psychological processes, and behavior. Providers must recognize the limitations of their cultural competence and utilize consultations and educational experiences to expand their competence.
Concurrently, clinicians in the United States are legally mandated to report child abuse to the appropriate state agency. This obligation transcends the cultural differences that may exist between the patient and therapist. However, the provider is expected to educate the patient and family about their state’s definition of child abuse and the provider’s duty to report child abuse. Providers are encouraged to not allow their personal prejudices to dictate their perceptions and clinical judgment. There is a dual responsibility to be sensitive to cultural differences and to protect children from harm (1–3).
Answer: C
Case B: A first-year psychiatry resident rotating through a busy outpatient pediatrics clinic is assigned to see a 16-year-old girl for a new patient evaluation. The patient was registered at the front desk by her mother, who then left. The patient reports that she is “relieved” to come to the doctor’s office because she gets “stressed out sometimes.” Relevant state law indicates that adolescents must have parental consent for medical evaluation and treatment, except in relation to sexual health and mental health.
The resident’s best option is to:
A.
Contact a legal representative regarding the appointment of a guardian for the patient
B.
Contact the state child protective services to report that the patient was left at the clinic without parental supervision
C.
Tell the patient that the visit must be rescheduled for a time when her mother can be present
D.
Assign a staff member to act as the patient’s guardian during the evaluation
E.
If the patient agrees, start the evaluation even though the mother is not present
Laws regarding adolescent medical and mental health care and parental consent vary from state to state. In many localities, advising adolescents about specific topics such as contraception and sexually transmitted diseases does not require parental consent for evaluation and treatment. When parental consent for treatment is needed, it may be demonstrated in a number of ways: if the parent participates in the medical visit, sends the teen with written permission for treatment, or gives consent by telephone. In this case, by registering the patient and leaving her in the waiting room, the mother’s action may be viewed as giving implied consent for the visit to proceed without her presence. The patient can also give assent to the visit: a 16-year-old can be expected to say whether he or she prefers to wait for the parent to return and to be able to give a relevant and adequate medical history (4, 5).
Answer: E
Case C: A 6-year-old child is brought to a psychiatrist for individual psychotherapy. The child states that he does not want to see the psychiatrist, that he does not want to be in therapy, and that he is coming only so that he will not “get into trouble” with his parents. The psychiatrist continues the psychotherapy.
What is the best ethical justification for the psychiatrist’s continuation of treatment despite the patient’s lack of agreement?
A.
The child is not being physically forced to come
B.
The child is unlikely to be developmentally capable of free and autonomous informed consent
C.
The child’s oppositional behavior demonstrates the need for therapy
D.
The psychiatrist has specialized knowledge about what is best for the child
E.
There is no ethical justification for the treatment of this child
It is always important to respect children who are patients and to attempt to obtain their assent for treatment. However, the capacity to make treatment decisions in a truly free and autonomous manner is tied to the developmental stage of the child. At 6 years of age, a child does not have the cognitive capability for his consent to be informed. Through the developmental trajectory, the cognitive capacities grow, and obtaining a child’s assent and eventually consent becomes more and more important. The same statements about therapy made by a 16-year-old should be given much greater weight (6, 7).
Answer: B
The parents of a 14-year-old girl want her included in a research study that is investigating a new medication that may or may not offer modest benefit for diabetes and that involves numerous blood draws. The parents sign the informed consent form. The girl, however, does not wish to participate in the study.
What should the researchers do?
A.
Enroll the girl because she is a minor and legally unable to provide informed consent
B.
Enroll the girl because the legal guardians consented to her participation
C.
Enroll the girl without informing her of her participation
D.
Not enroll the girl because she did not provide her assent to participate
E.
Not enroll the girl because she is decisionally impaired
Guidelines from the U.S. Department of Health and Human Services stipulate that in addition to receiving parental permission for a minor child to participate in research, investigators must obtain the assent of the child before he or she can be included in the research protocol. Information about the research needs to be presented to children in a manner that is congruent to their age and level of cognitive development. Assent must be communicated in the form of an affirmative agreement; children can therefore veto their own participation (8–10).
Answer: D
References
1.
American Psychological Association: Guidelines for Providers of Psychological Services to Ethnic, Linguistic, and Culturally Diverse Populations. Washington, DC, American Psychological Association, 1990
2.
American Psychological Association: Guidelines on multicultural education, training, research, practice, and organizational change for psychologists. Am Psychol 2003; 58:377–402
3.
Gibbs JT, Huang LN: Children of Color: Psychological Interventions with Culturally Diverse Youth. San Francisco, Jossey-Bass, 1998
4.
American Psychiatric Association: Ethics Primer of the American Psychiatric Association. Washington, DC, American Psychiatric Association, 2001a
5.
Beauchamp TL, Childress JF: Principles of Biomedical Ethics, 5th ed. New York, Oxford University Press, 2001
6.
Hurley JC, Underwood MK: Children’s understanding of their research rights before and after debriefing: informed assent, confidentiality, and stopping participation. Child Dev 2002; 73:132–143
7.
Nurcombe B: Malpractice, in Child and Adolescent Psychiatry: A Comprehensive Textbook, 3rd ed. Edited by, Lewis M. Philadelphia, PA, Lippincott Williams & Wilkins, 2002
8.
Arnold LE, Stoff DM, Cook E, Cohen DJ, Kruesi M, Wright C, Hattab J, Graham P, Zametkin A, Castellanos FX, et al.: Ethical issues in biological psychiatric research with children and adolescents. J Am Acad Child Adolesc Psychiatry 1995; 34:929–939
9.
Rosato J: The ethics of clinical trials: a child’s view. J Law Med Ethics 2000; 28:362–378
10.
U.S. Department of Health and Human Services: Code of Federal Regulations: Title 45 Public Welfare Department of Health and Human Services Part 46 Protection of Human Subjects. 2005.
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